Jacqueline M. Grubb

Jackie is passionate about family and patient advocacy. She has been married to her husband Mitch for 18 years and resides in rural Kansas where they are raising their 4 children. Jackie became a nurse 20 years ago from Barton County Community College and later received a Bachelor degree in Science from The University of Kansas. She is an avid student and practitioner of alternative healing modalities which led her to teach intensive training courses internationally. Over the last 10 years, she has spearheaded the inclusion of yoga and healing arts programs in places such as a mental health prison, a community college, and rural community centers.

In 2014, at the age of 4, her youngest son Cameron was displaying unusual symptoms and it was eventually discovered that he had Severe Renovascular Hypertension related to Midaortic Syndrome. The limited healthcare options and services in rural Kansas presented great obstacles and challenges for the family to overcome. Jackie maintained her goal of advocating, strongly and gracefully, for her son over the course of many years. Through her advocacy, Jackie played a centralized and significant role in saving Cameron’s life during crucial moments and in critical situations. She feels it is important to develop healthy relationships with providers and to support them in their work. With Jackie’s vigilance, determination, and teamwork approach, Cameron’s phenomenal team of doctors from the Mid-Aortic Syndrome and Renovascular Hypertension Team at Boston Children’s Hospital, were able to help Cameron survive adverse events such as, Acute Kidney Injury, Multi-system Organ Dysfunction Syndrome, a ruptured aorta, renal arterial graft thromboses, and other life-threatening conditions.

Jackie entered the field of Emergency Medical Services for her local 911 service after finding her son unresponsive at home and is now a Nationally Registered Paramedic. Most recently, she has worked as a Critical Care Transport RN/Paramedic on a ground ambulance in rural Kansas where they transport patients over long distances to definitive care. She wants to ensure that patients and their families receive the care and advocacy they deserve during their critical times of need, the way Cameron needed others to advocate and care for him.